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Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
by
Heesen, C
, Reich, C
, Böhm, J
, Goebel, M
, Kasper, J
, Gold, SM
in
Adolescent
/ Adult
/ Biological and medical sciences
/ Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases
/ Disability Evaluation
/ Disabled Persons - psychology
/ Gait
/ Humans
/ Medical sciences
/ Middle Aged
/ Multiple Sclerosis - physiopathology
/ Multiple Sclerosis - psychology
/ Multiple sclerosis and variants. Guillain barré syndrome and other inflammatory polyneuropathies. Leukoencephalitis
/ Neurology
/ Perception
/ Surveys and Questionnaires
/ United Kingdom
/ Vision, Ocular
2008
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Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
by
Heesen, C
, Reich, C
, Böhm, J
, Goebel, M
, Kasper, J
, Gold, SM
in
Adolescent
/ Adult
/ Biological and medical sciences
/ Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases
/ Disability Evaluation
/ Disabled Persons - psychology
/ Gait
/ Humans
/ Medical sciences
/ Middle Aged
/ Multiple Sclerosis - physiopathology
/ Multiple Sclerosis - psychology
/ Multiple sclerosis and variants. Guillain barré syndrome and other inflammatory polyneuropathies. Leukoencephalitis
/ Neurology
/ Perception
/ Surveys and Questionnaires
/ United Kingdom
/ Vision, Ocular
2008
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Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
by
Heesen, C
, Reich, C
, Böhm, J
, Goebel, M
, Kasper, J
, Gold, SM
in
Adolescent
/ Adult
/ Biological and medical sciences
/ Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases
/ Disability Evaluation
/ Disabled Persons - psychology
/ Gait
/ Humans
/ Medical sciences
/ Middle Aged
/ Multiple Sclerosis - physiopathology
/ Multiple Sclerosis - psychology
/ Multiple sclerosis and variants. Guillain barré syndrome and other inflammatory polyneuropathies. Leukoencephalitis
/ Neurology
/ Perception
/ Surveys and Questionnaires
/ United Kingdom
/ Vision, Ocular
2008
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Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
Journal Article
Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable
2008
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Overview
Multiple sclerosis is a heterogeneous disease with varying clinical picture. There have been substantial efforts to develop outcome measurements for therapeutic interventions but very few studies have addressed the value of bodily functions from the patient perspective. In a randomly selected cohort of early (<5 years, n = 84) and longer lasting disease courses (>15 years, n = 82) patients we asked for a weighting of 13 bodily functions and compared results with actual disability as measured by the United Kingdom Disability Scale. Lower limb function was given the highest priority in both patient groups followed by visual functioning and cognition especially in longer lasting MS. Actual disability did not correlate with the given priorities indicating that experienced deficits do not influence the subjective ratings of bodily functions. These results underline that ambulation-focused scales in MS represent a key dimension from the patient perspective. Visual functioning should be taken more into account.
Publisher
SAGE Publications,Arnold,Sage Publications Ltd
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