Journal Article

The Role of Place in Person- and Family-Oriented Long-Term Services and Supports

BALLREICH, JEROMIE, WOLFF, JENNIFER L., CHYR, LINDA C., WU, MINGCHE M. J., OKOYE, SAFIYYAH M., JOPSON, ANDREW D., SCERPELLA, DANNY, BURGDORF, JULIA G., FABIUS, CHANEE D.

2023

Overview

Policy Points Little attention to date has been directed at examining how the long‐term services and supports (LTSS) environmental context affects the health and well‐being of older adults with disabilities. We develop a conceptual framework identifying environmental domains that contribute to LTSS use, care quality, and care experiences. We find the LTSS environment is highly associated with person‐reported care experiences, but the direction of the relationship varies by domain; increased neighborhood social and economic deprivation are highly associated with experiencing adverse consequences due to unmet need, whereas availability and generosity of the health care and social services delivery environment are inversely associated with participation restrictions in valued activities. Policies targeting local and state‐level LTSS‐relevant environmental characteristics stand to improve the health and well‐being of older adults with disabilities, particularly as it relates to adverse consequences due to unmet need and participation restrictions. Context Long‐term services and supports (LTSS) in the United States are characterized by their patchwork and unequal nature. The lack of generalizable person‐reported information on LTSS care experiences connected to place of community residence has obscured our understanding of inequities and factors that may attenuate them. Methods We advance a conceptual framework of LTSS‐relevant environmental domains, drawing on newly available data linkages from the 2015 National Health and Aging Trends Study to connect person‐reported care experiences with public use spatial data. We assess relationships between LTSS‐relevant environmental characteristic domains and person‐reported care adverse consequences due to unmet need, participation restrictions, and subjective well‐being for 2,411 older adults with disabilities and for key population subgroups by race, dementia, and Medicaid enrollment status. Findings We find the LTSS environment is highly associated with person‐reported care experiences, but the direction of the relationship varies by domain. Measures of neighborhood social and economic deprivation (e.g., poverty, public assistance, social cohesion) are highly associated with experiencing adverse consequences due to unmet care needs. Measures of the health care and social services delivery environment (e.g., Medicaid Home and Community‐Based Service Generosity, managed LTSS [MLTSS] presence, average direct care worker wage, availability of paid family leave) are inversely associated with experiencing participation restrictions in valued activities. Select measures of the built and natural environment (e.g., housing affordability) are associated with participation restrictions and lower subjective well‐being. Observed relationships between measures of LTSS‐relevant environmental characteristics and care experiences were generally held in directionality but were attenuated for key subpopulations. Conclusions We present a framework and analyses describing the variable relationships between LTSS‐relevant environmental factors and person‐reported care experiences. LTSS‐relevant environmental characteristics are differentially relevant to the care experiences of older adults with disabilities. Greater attention should be devoted to strengthening state‐ and community‐based policies and practices that support aging in place.

• Publisher: Wiley,Blackwell Publishing Ltd,John Wiley and Sons Inc
• Subject: Adults / Adverse / Affordability / Aged / Aging / Aging (natural) / aging policy / Attention / Availability / caregiving / Community / Constrictions / Dementia / Dementia disorders / Deprivation / Deprived areas / Disabilities / disparities / Economic deprivation / Economics / Enrollments / Environment / Environmental aspects / Environmental factors / Families & family life / Family leave / Family roles / Health care / Health services / Health Services Needs and Demand / Housing / Humans / Independent Living / Inequality / Long-Term Care / long‐term services and supports / Medicaid / Natural environment / Neighborhoods / Older people / Original Scholarship / Participation / People with disabilities / Persons with Disabilities / Policies / Poverty / Public use / Quality of care / Race / Restrictions / Social cohesion / social determinants of health / Social services / Social services delivery / Spatial data / Subgroups / Subpopulations / Support services / United States / Well being