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Reality Check: The Aspirations of the European Health Data Space Amidst Challenges in Decentralized Data Analysis
by
Funck Hansen, Anne
, Hilvo, Mika
, Gribbon, Phil
, Satagopam, Venkata
, Negreanu, Sanziana
, Moazemi, Sobhan
, Muehlendyck, Christian
, Madan, Sumit
, Fröhlich, Holger
, Jansen, Gunther
in
Advanced Data Analytics in eHealth
/ Big Data
/ Data Analysis
/ Electronic Health Records - legislation & jurisprudence
/ Europe
/ Humans
/ Research Infrastructures and Registries
/ Secondary Use of Clinical Data for Research and Surveillance
/ Viewpoint
/ Viewpoints and s
2025
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Reality Check: The Aspirations of the European Health Data Space Amidst Challenges in Decentralized Data Analysis
by
Funck Hansen, Anne
, Hilvo, Mika
, Gribbon, Phil
, Satagopam, Venkata
, Negreanu, Sanziana
, Moazemi, Sobhan
, Muehlendyck, Christian
, Madan, Sumit
, Fröhlich, Holger
, Jansen, Gunther
in
Advanced Data Analytics in eHealth
/ Big Data
/ Data Analysis
/ Electronic Health Records - legislation & jurisprudence
/ Europe
/ Humans
/ Research Infrastructures and Registries
/ Secondary Use of Clinical Data for Research and Surveillance
/ Viewpoint
/ Viewpoints and s
2025
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Reality Check: The Aspirations of the European Health Data Space Amidst Challenges in Decentralized Data Analysis
by
Funck Hansen, Anne
, Hilvo, Mika
, Gribbon, Phil
, Satagopam, Venkata
, Negreanu, Sanziana
, Moazemi, Sobhan
, Muehlendyck, Christian
, Madan, Sumit
, Fröhlich, Holger
, Jansen, Gunther
in
Advanced Data Analytics in eHealth
/ Big Data
/ Data Analysis
/ Electronic Health Records - legislation & jurisprudence
/ Europe
/ Humans
/ Research Infrastructures and Registries
/ Secondary Use of Clinical Data for Research and Surveillance
/ Viewpoint
/ Viewpoints and s
2025
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Reality Check: The Aspirations of the European Health Data Space Amidst Challenges in Decentralized Data Analysis
Journal Article
Reality Check: The Aspirations of the European Health Data Space Amidst Challenges in Decentralized Data Analysis
2025
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Overview
The European Health Data Space (EHDS) aspires to enable secure, interoperable, and decentralized health data usage across Europe. This paper explores legal and technical challenges in implementing EHDS goals, particularly for secondary data use. It highlights federated and swarm learning as promising yet complex solutions, requiring robust infrastructure, standardization, and regulatory clarity. We emphasize the need for coordinated legislative and technological advances to realize EHDS ambitions.
Publisher
Journal of Medical Internet Research,JMIR Publications Inc,JMIR Publications
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