Journal Article

Defining patient-reported outcomes in diabetes, obesity, cardiovascular disease, and chronic kidney disease for clinical practice guidelines - perspectives of the taskforce of the Guideline Workshop

Standl, Eberhard, Wanner, Christoph, Schnell, Oliver, Koob, Sue, Gavin, James R., Rydén, Lars, Green, Jennifer, Jeppesen, Britta Tendal, Marx, Nikolaus, Rötzer, René D., Vandvik, Per Olav, Lalic, Nebojsa, Rodbard, Helena W., Battelino, Tadej, Kosiborod, Mikhail, Ji, Linong, Nedungadi, Prashant, Brosius, Frank C., Ceriello, Antonio, Giorgino, Francesco, Topsever, Pinar, Sheu, Wayne Huey-Herng, Kellerer, Monika, Cosentino, Francesco, Parkin, Christopher G., Barnard-Kelly, Katharine

2025

Overview

Recent clinical practice guidelines for diabetes, obesity, cardiovascular disease (CVD) and chronic kidney disease (CKD) emphasise a holistic, person-centred approach to care. However, they do not include recommendations for the assessment of patient-reported outcomes (PROs), which would – dependent on the topic of guideline – be important for improving shared decision-making, patients’ concordance with guideline recommendations, clinical outcomes and health-related quality of life (HRQoL). The Taskforce of the Guideline Workshop discussed PROs in diabetes, obesity, CVD and CKD as well as the relevance of their inclusion in clinical practice guidelines for the management of these conditions. Highlights Patient engagement in disease management is a topic that is becoming increasingly important, also in terms of improving clinical outcomes Person-reported outcome measures (PROMs) are tools to assess person-reported outcomes (PROs) in an efficient and standardized manner Validated disease-specific measures for diabetes, obesity, CVD, and CKD as well as generic measures are available Currently underutilised in the routine care of cardio-renal-metabolic diseases, the integration of recommendations on PROs and PROMs into clinical practice guidelines may help to overcome the barriers to their implementation

• Publisher: BioMed Central,Springer Nature B.V,BMC
• Subject: Angiology / Cardiology / Cardiovascular disease / Cardiovascular diseases / Cardiovascular Diseases - diagnosis / Cardiovascular Diseases - epidemiology / Cardiovascular Diseases - therapy / Chronic illnesses / Chronic kidney disease / Clinical medicine / Clinical practice guidelines / Clinical trials / Comment / Comorbidity / Decision making / Diabetes / Diabetes mellitus / Diabetes Mellitus - diagnosis / Diabetes Mellitus - epidemiology / Diabetes Mellitus - therapy / Disease management / Glucose / Humans / Infusion pumps / Insulin / Kidney diseases / Medicine / Medicine & Public Health / Mental health / Metabolic syndrome / Obesity / Obesity - diagnosis / Obesity - epidemiology / Obesity - therapy / Patient Reported Outcome Measures / Patient satisfaction / Patient-centered care / Person-reported outcomes / Practice Guidelines as Topic - standards / Quality of Life / Renal Insufficiency, Chronic - diagnosis / Renal Insufficiency, Chronic - epidemiology / Renal Insufficiency, Chronic - therapy / Shared decision making / Treatment Outcome / Well being