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Transparency, trust and minimizing burden to increase recruitment and recruitment in trials: a systematic review
by
Gonzalez, Andrea Matus, BNtrSc
, Natale, Patrizia, MSc (ClinEpi)
, Ruospo, Marinella, PhD
, Strippoli, Giovanni FM, PhD
, Guha, Chandana, MA
, Teixeira-Pinto, Armando, PhD
, Saglimbene, Valeria, PhD
, Scholes-Robertson, Nicole, BSc
, Craig, Jonathan C, PhD
, Snelling, Tom, PhD
, Tong, Allison, PhD
in
Internal Medicine
2021
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Transparency, trust and minimizing burden to increase recruitment and recruitment in trials: a systematic review
by
Gonzalez, Andrea Matus, BNtrSc
, Natale, Patrizia, MSc (ClinEpi)
, Ruospo, Marinella, PhD
, Strippoli, Giovanni FM, PhD
, Guha, Chandana, MA
, Teixeira-Pinto, Armando, PhD
, Saglimbene, Valeria, PhD
, Scholes-Robertson, Nicole, BSc
, Craig, Jonathan C, PhD
, Snelling, Tom, PhD
, Tong, Allison, PhD
in
Internal Medicine
2021
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Transparency, trust and minimizing burden to increase recruitment and recruitment in trials: a systematic review
by
Gonzalez, Andrea Matus, BNtrSc
, Natale, Patrizia, MSc (ClinEpi)
, Ruospo, Marinella, PhD
, Strippoli, Giovanni FM, PhD
, Guha, Chandana, MA
, Teixeira-Pinto, Armando, PhD
, Saglimbene, Valeria, PhD
, Scholes-Robertson, Nicole, BSc
, Craig, Jonathan C, PhD
, Snelling, Tom, PhD
, Tong, Allison, PhD
in
Internal Medicine
2021
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Transparency, trust and minimizing burden to increase recruitment and recruitment in trials: a systematic review
Journal Article
Transparency, trust and minimizing burden to increase recruitment and recruitment in trials: a systematic review
2021
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Overview
Highlights•The barriers and facilitators to trial participation from the patient perspectives are captured in the themes of ambiguity of context and benefit, lacking awareness of opportunity, wary of added burden, skepticism, fear and mistrust, building confidence, and social gains and belonging to the community. •Trials were perceived as an opportunity for some patients to access free and high-quality healthcare •Patients feared discrimination and inequities in accessing healthcare, particularly among patients from vulnerable ethnic minority groups, discouraged participation in trials.
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