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Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research
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Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research
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Journal Article
Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research
2016
Overview
Date Presented 4/8/2016 Through parent-based and clinician-based focus groups, we qualitatively explored barriers to engaging families of children with rare diseases in clinical trials. The insight gained may improve the future design of clinical research protocols and improve participation in future clinical trials. Primary Author and Speaker: Roxanna Bendixen Contributing Author: Lauren Hache Morgenroth
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