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HONORING OUR JOURNEYS: THE IMPORTANCE OF PALLIATIVE CARE AND NARRATIVE MEDICINE IN ONCOLOGY
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Journal Article
HONORING OUR JOURNEYS: THE IMPORTANCE OF PALLIATIVE CARE AND NARRATIVE MEDICINE IN ONCOLOGY
2024
Overview
At a National Cancer Institute (NCI) designated Comprehensive Cancer Center Palliative care is a pivotal component of comprehensive oncology care. (n=120,000 patient visits annually and n=57,000 physicians and staff) The intersections of diversity, equity, and inclusion (DEI) in the effective integration of palliative care was identified as a potential opportunity to expand best practices across care delivery in the cancer trajectory. The purpose was to describe a GE-accredited educational offering for oncology clinical staff that incorporated narrative medicine techniques to enhance DEI across the continuum of palliative care, while facilitating a healing landscape in which patients, families, and the workforce can ideally honor their unique, respective journeys. As an element of graduate studies an oncology nurse researched palliative care and narrative medicine to develop a webinar delivered live and available for on demand viewing. Disparities and Bias in Cancer Care were discussed. The HUMBLE model was utilized to explore acceptance of differences that may include race and ethnicity, gender identity, national origin, religion, sexual orientation, neurodiversity, and how one physically, emotionally, and spiritually navigates the world. A world-cloud exercise using the painting \"Sea and Rain\" by James McNeill Whistler (1865) provided an opportunity for reflection, and audience engagement for content integration. A brief introduction to narrative medicine was provided through the sharing of knowledge gained through an interview with the founder of this philosophy, while integrating imagery and real-world examples from nursing practice to exhibit the potentiality and ideal of narrative medicine and palliative care as a whole. A diverse group of oncology clinical staff including: LPNs, Nurse Managers, Program Directors, Nurse Practitioners, Nurse Educators/Glinical Nurse Specialists, and RNs from three different campuses of our cancer center. Preliminary evaluation data compiled from post-webinar RedCap surveys demonstrated positive learning from the content in addition to reflections regarding how the content may potentially impact the way in which oncology clinical staff approach how they carry out their roles as caregivers. The Webinar via on demand viewing continues to be utilized as a GE-accredited course. The provision of culturally-sensitive palliative care is appropriate at all time points in the oncology care continuum and should be uniquely offered to individuals with intentional respect, while honoring diversity and the way in which all individuals uniquely live life in the ever-changing and complexities within the cancer journey.
Publisher
Oncology Nursing Society
Subject
