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'Human guinea pigs' suffer loss of dignity
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Newspaper Article
'Human guinea pigs' suffer loss of dignity
2004
Overview
Lately, the label that used to spark outrage is being abused and misused. It is misused by desperate patients who want to participate in trials for new drugs and clamor to become human guinea pigs because that role offers them hope. It is abused by alarmists who see bad science everywhere. Despite the cheerful attitudes of patients who want experimental treatments, and the inflammatory rhetoric about orphans, neither group has a legitimate claim to the label human guinea pig. This is not just a matter of language, but a matter of real concern among those who were once used as human guinea pigs and resent the casual use of the phrase. Now 63, Boyce has metastatic colon cancer, which his doctor has said will kill him. You might expect him to blame the doses of radiation his colon received years ago. But Boyce refuses to speculate. He knows it's impossible to make a good argument for cause and effect in his case. Besides, that's not the point to stress when you talk about human guinea pigs.
Publisher
Newsday LLC
Subject
