Journal Article

From doctors as patients: a manifesto for tackling persisting symptoms of covid-19

Rayner, Clare, Delaney, Brendan, Dynan, Caitriona, MacDermott, Nathalie, Shand, Claudia, Bradman, Madeleine, Suett, Jake, Powell, Laura, Sahu, Ekta, Taylor, Sharon, Woods, Victoria, Blair, Jennifer Mary, MacKinnon, Mairi, Northridge, Tanya, Järte, Linn, Majithia, Visita, Frayling, Ian M, Burns, Sarah, Strachan, Cara, Dixon, Chris, Cushing, Katherine, Bowen, Mary-Ann, Small, Amy, Freeman-Romilly, Nell, Hammond, Iulia, Thomas, Kevin, Thomson, Margarita, Wiltshire, Alexis, Lokugamage, Amali, Judge, Jenny, Campion, Daniel, Sykes, Becky, Bogaert, Debby, Boyle, John, Dolman, Grace E, Attree, Emily, Read, Ginevra, Briggs, Tracy Ann, Alwan, Nisreen A

2020

Overview

1 Research and surveillance need to capture the full spectrum of disease, including in those not admitted to hospital and not tested, to build an accurate picture of covid-19 phenotypes. The timing of tests for active covid-19 infection (such as RT-PCR tests) affects test performance, and even if performed at an optimal time, the test is associated with a considerable risk of false negatives.9 We know antibody tests have mainly been validated in patients in hospital and are poorly sensitive early in the illness.10 There are few data regarding testing later in the disease course, and false negatives seem to be common. [...]adherence to positive test results as a criterion for access to medical services or specific covid-19 sick pay arrangements with employers is unacceptable in the context of a clinical diagnosis of covid-19. Liberating the NHS: no decision about me, without me—government response to the consultation. 2020. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/216980/Liberating-the-NHS-No-decision-about-me-without-me-Government-response.pdf 7 Lokugamage A, Taylor S, Rayner C. Patients’ experiences of “long covid” are missing from the NHS narrative. 2020. https://blogs.bmj.com/bmj/2020/07/10/patients-experiences-of-longcovid-are-missing-from-the-nhs-narrative/ 8 National Institute for Health Research.

• Publisher: British Medical Journal Publishing Group,BMJ Publishing Group LTD
• Subject: Betacoronavirus / Coronavirus Infections - complications / Coronavirus Infections - epidemiology / Coronavirus Infections - therapy / Coronaviruses / COVID-19 / COVID-19 diagnostic tests / Hospitals / Humans / Infections / Letters / Medical research / Pandemics / Pathology / Pathophysiology / Patients / Physician's Role / Physicians / Pneumonia, Viral - complications / Pneumonia, Viral - epidemiology / Pneumonia, Viral - therapy / Politics / Polymerase chain reaction / Rehabilitation / SARS-CoV-2 / Severe acute respiratory syndrome coronavirus 2 / Surveillance / Symptom Assessment / Viral infections