Journal Article

Personalised care packages for people with rheumatoid arthritis: a mixed-methods study

Young, Adam, Nikiphorou, Elena, Dey, Mrinalini, Pratt, Arthur, Isaacs, John D, Ndosi, Mwidimi, Lempp, Heidi, Busby, Amanda

2024

Overview

ObjectivesDisease management in rheumatoid arthritis (RA) requires holistic assessment. We aimed to design personalised care packages suitable for people with RA.MethodsThis study was conducted using a mixed-methods approach and exploratory sequential design. Consensus workshops were held, involving people with RA and healthcare professionals (HCPs) treating them. Subsequently, an online survey sought views on future care packages for people with RA at relevant disease progression/stages, based on (1) results from previous quantitative data analyses (eg, socioeconomic/clinical factors), and (2) themes identified during workshops.ResultsTwo conceptual care pathways were identified: (1) around the time of RA diagnosis, an early opportunity to influence the disease course; (2) for individuals with established RA, emphasising the importance of ‘the right MDT member at the right time’.Three care packages were suggested: (1) early care package (around RA diagnosis): introduction to MDT; (2) continuity of care package (established RA): primary/secondary providers; and (3) personalised holistic care package: integral to packages 1 and 2, implemented alongside allied health professionals.The survey received 41 responses; 82.9% agreed that people with RA need a consistent ‘early care package’ at diagnosis. 85.4% approved of additional care packages tailored to individuals’ clinical, psychological and social needs when moving to different stages of their long-term disease. Fleiss’ Kappa calculations demonstrated fair level of agreement among respondents.ConclusionTwo care pathways, with three tailored care packages, were identified, with potential to improve management of people with RA. Future research will help to determine if such care packages can impact clinical (including patient-reported) outcomes.

• Publisher: EULAR,BMJ Publishing Group LTD,BMJ Publishing Group
• Subject: Arthritis, Rheumatoid - diagnosis / Arthritis, Rheumatoid - therapy / Critical Pathways / Data collection / Disease management / Health Personnel / Humans / Inflammatory Arthritis / Mixed methods research / Multidisciplinary teams / Patient Care Team / Patient Reported Outcome Measures / Patients / Professionals / Qualitative research / Remission (Medicine) / Research Design / Rheumatoid Arthritis / Rheumatology / Workshops