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Breaking barriers: centering researchers with lived experience in psychiatric neuroscience
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Journal Article
Breaking barriers: centering researchers with lived experience in psychiatric neuroscience
2025
Overview
Researchers with lived experience (RWLE) of serious mental illness or substance use disorders (SMI/SUD) bring critical dual expertise to psychiatric neuroscience as both scientists and individuals directly affected by the conditions they study. Yet their participation and leadership remain profoundly limited by entrenched stigma, disclosure risks that can obstruct promising career trajectories, lack of mentorship from senior RWLE, and the absence of structural protections against discrimination and exclusion. These systemic barriers silence voices that can help transform the field’s understanding of mental illness and its biological underpinnings. Drawing on the authors’ lived and/or professional experiences, this Perspective challenges the assumption that lived experience introduces bias, reframing it as a source of empirical strength, innovation, and epistemic diversity. Here, the authors propose structural reforms to reshape admissions, mentorship, and leadership pathways. Centering RWLE is both a scientific necessity and an ethical imperative for advancing a more equitable and representative psychiatric neuroscience.
Lay Summary
Researchers who live with serious mental illness or substance use disorders bring unique insight to psychiatric neuroscience, yet they remain underrepresented in the field. This paper calls for recognizing and removing the barriers that limit their participation and leadership. Including these researchers strengthens the science, improves the relevance of the research to real-world needs, and helps to ensure that research about mental illness includes those who live it.
Publisher
Springer International Publishing,Nature Publishing Group,Springer
Subject
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