Journal Article

Championing Partnerships for Data Equity

Bautista, Roxanna, Rice, Dorothy, Ro, Marguerite J, Tseng, Winston, Sondik, Edward J, Bau, Ignatius, Ponce, Ninez A

2015

Overview

Good population health data are often taken for granted, and the people and organizations that gather it are often unsung heroes. For communities of color, immigrants, the LGBTQ population, and other special populations, such as the 50 ethnic and 100 language groups that make up Asian Americans (AA) and Native Hawaiians and Pacific Islanders (NHPI), generating good population -- representative data continues to be a major challenge. For AAs and NHPIs, characteristics of good population data are in-language administration and cultural adaptation of surveys, detailed collection of ethnic groups within the AA and NHPI aggregate categories, and adequate samples for reportable estimates, oversampling of smaller ethnic groups-elements that were non-existent 30 years ago. Nationally, AA and NHPI population health data today are products of the mettle, vigilance, and constant relay of data heroes representing many sectors and communities who have paved the way for all individuals to be recognized and counted.

• Publisher: Johns Hopkins University Press
• Subject: Adjustment / Advisory Committees / Asian Americans / Cultural groups / Data / Data collection / Data Collection - standards / Ethnic groups / Ethnicity / Health information / Health services / Heroism & heroes / Humans / Immigrants / Leadership / LGBTQ people / Minority & ethnic groups / Mortality / Oceanic Ancestry Group / Pacific Islander people / Partnerships / Population / Public-Private Sector Partnerships / United States / Vigilance