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Crowdfunding to compensate for financial burdens of patients with systemic sclerosis
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Crowdfunding to compensate for financial burdens of patients with systemic sclerosis
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Crowdfunding to compensate for financial burdens of patients with systemic sclerosis
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Journal Article
Crowdfunding to compensate for financial burdens of patients with systemic sclerosis
2024
Overview
Characteristics of SSc crowdfunding campaigns Characteristic N (%) N=652 Funding recipient Self (person with SSc) 203 (31.1) Another person with SSc 510 (78.2) SSc-related charitable organization 48 (7.4) Impact of SSc described in campaign Financial burden 539 (82.7) Functional impairment 468 (71.8) Psychosocial distress 253 (38.8) Unspecified impact on quality of life 102 (15.7) Sources of financial burden Loss or expected loss of income 218 (33.4) Lack of health insurance 13 (2) Incomplete insurance coverage 166 (25.4) Lack of insurance coverage for medications 30 (4.6) Lack of insurance coverage for procedures 54 (8.3) Fundraising goal (average, [range]) $21,627.83 [$100 - $300,000] Amount raised (average, [range]) $5,409.66 [$0 - $44,780] Campaigns meeting fundraising goal 96 (14.8) Abbreviation: SSc, systemic sclerosis [See PDF for image] Fig. 1 Categories to which SSc crowdfunding campaigns allocated their donations This study highlights the financial hardships experienced by individuals with SSc, as well as the limited effectiveness of crowdfunding in providing support. [...]our study highlights financial challenges confronting individuals with SSc. A.L. and D.M. oversaw data collection, data analysis, and preparation of the main manuscript.
Publisher
Springer Berlin Heidelberg,Springer Nature B.V
Subject
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