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Crowdfunding for neuromuscular disease treatment: the ethical implications
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Crowdfunding for neuromuscular disease treatment: the ethical implications
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Journal Article
Crowdfunding for neuromuscular disease treatment: the ethical implications
2021
Overview
Crowdfunding provides pharmaceutical companies with an opportunity to gain free promotion for their products and puts pressure on public funders by demonstrating the patients’ willingness to get treatment. When there is a realistic chance of crowdfunding success and clinical benefit for the child, clinicians have a vital role to play in supporting families’ crowdfunding efforts. LS has provided paid consultancy for Novartis Gene Therapy, Roche, and Biogen, and obtained funding from these companies for a newborn screening programme in Belgium.
Publisher
Elsevier Ltd,Elsevier Limited,The Lancet Publishing Group
Subject
