Journal Article

Needs Expressed in Peer-to-Peer Web-Based Interactions Among People With Depression and Anxiety Disorders Hospitalized in a Mental Health Facility: Mixed Methods Study

Jemioło, Paweł, Sawiec, Zuzanna, Prokop-Dorner, Anna, Storman, Dawid, Swierz, Mateusz Jan, Antonowicz, Ewa, Bala, Malgorzata M

2024

Overview

Hospitalization in psychiatric wards is a necessary step for many individuals experiencing severe mental health issues. However, being hospitalized can also be a stressful and unsettling experience. It is crucial to understand and address the various needs of hospitalized individuals with psychiatric disorders to promote their overall well-being and support their recovery. Our objectives were to identify and describe individual needs related to mental hospitals through peer-to-peer interactions on Polish web-based forums among individuals with depression and anxiety disorders and to assess whether these needs were addressed by peers. We conducted a search of web-based forums focused on depression and anxiety and selected samples of 160 and 176 posts, respectively, until we reached saturation. A mixed methods analysis that included an in-depth content analysis, the Pearson χ test, and φ coefficient was used to evaluate the posts. The most frequently identified needs were the same for depression and anxiety forums and involved informational (105/160, 65.6% and 169/393, 43%, respectively), social life (17/160, 10.6% and 90/393, 22.9%, respectively), and emotional (9/160, 5.6% and 66/393, 16.8%, respectively) needs. The results show that there is no difference in the expression of needs between the analyzed forums. The needs were directly (42/47, 89% vs 98/110, 89.1% of times for depression and anxiety, respectively) and not fully (27/47, 57% vs 86/110, 78.2% of times for depression and anxiety, respectively) addressed by forum users. In quantitative analysis, we found that depression-related forums had more posts about the need for informational support and rectification, the expression of anger, and seeking professional support. By contrast, anxiety-related forums had more posts about the need for emotional support; social life; and information concerning medications, hope, and motivation. The most common co-occurrence of expressed needs was between sharing own experience and the need for professional support, with a strong positive association. The qualitative analysis showed that users join web-based communities to discuss their fears and questions about psychiatric hospitals. The posts revealed 4 mental and emotional representations of psychiatric hospitals: the hospital as an unknown place, the ambivalence of presumptions and needs, the negative representation of psychiatric hospitals, and the people associated with psychiatric hospitals. The tone of the posts was mostly negative, with discussions revolving around negative stereotypes; traumatic experiences; and beliefs that increased anxiety, shock, and fright and deterred users from hospitalization. Our study demonstrates that web-based forums can provide a platform for individuals with depression and anxiety disorders to express a wide range of needs. Most needs were addressed by peers but not sufficiently. Mental health professionals can benefit from these findings by gaining insights into the unique needs and concerns of their patients, thus allowing for more effective treatment and support.

• Publisher: Journal of Medical Internet Research,Gunther Eysenbach MD MPH, Associate Professor,JMIR Publications
• Subject: Adult / Ambivalence / Anger / Anxiety / Anxiety disorders / Anxiety Disorders - psychology / Comorbidity / Content analysis / Depression - psychology / Disorders / Drug abuse / Emotional support / Emotions / False information / Female / Fright / Health aspects / Health facilities / Hospitalization / Hospitalization - statistics & numerical data / Hospitals, Psychiatric / Humans / Internet / Male / Medical personnel / Medical treatment / Mental depression / Mental disorders / Mental health / Mental health care / Mental health professionals / Mental institutions / Middle Aged / Mixed methods research / Motivation / Needs / Original Paper / Patients / Peer Group / Peers / Poland / Presumptions / Professionals / Psychiatric hospital care / Psychiatric hospitals / Psychiatrists / Psychiatry / Qualitative research / Quantitative analysis / Research methodology / Saturation / Social life & customs / Stereotypes / Trauma / Traumatic life events / Well being