Journal Article

The Lancet Commission on the future of care and clinical research in autism

Shattuck, Paul, Carbone, Paul, Servili, Chiara, Wang, Paul P, Dissanayake, Cheryl, Ysrraelit, Maria Celica, Charman, Tony, Howlin, Patricia, Scahill, Lawrence, Knapp, Martin, Szatmari, Peter, McCauley, James B, Anagnostou, Evdokia, Boyd, Brian, Holbrook, Alison, Havdahl, Alexandra, Singer, Alison Tepper, Plank, Alex, Carr, Themba, Cusack, James, Lord, Catherine, Divan, Gauri, Kasari, Connie, Mundy, Peter, Slonims, Vicky, Jellett, Rachel, Toolan, Christina, Simonoff, Emily, Pickles, Andrew, Freitag, Christine M, Gotelli, Marina M, de Vries, Petrus J

2022

Overview

Using data from a large-scale epidemiological sample (generously shared with us by the Norwegian Institute of Public Health), we provide initial examples of how and why such a stepped care and personalised health approach could be applied to address both the core features of autism and co-occurring conditions. Focused research strategies at the government or institutional level should be prioritised with an emphasis on clinical practice that can increase the understanding of what interventions work, for whom, when, how, with what general outcomes, and at what cost. Governments and services should monitor access to provision to ensure that underserved groups, including those who are minimally verbal, girls and women, minority ethnic groups, from socially disadvantaged backgrounds, or with severe co-occurring conditions, have equitable access to appropriate services. Societies in every part of the world have a duty of care to all people with autism and those who care for them, and investment in research and services needs to be targeted wisely to help them to reach better life outcomes and propel the change that makes this possible. Because it is defined by the intersection of social communication and sensory, restricted, and repetitive behaviours and interests, autism is a relatively specific disorder.

• Publisher: Elsevier Ltd,Elsevier Limited
• Subject: Autism / Autistic children / Autistic Disorder - epidemiology / Autistic Disorder - therapy / Biomedical Research - trends / Epidemiology / Global Burden of Disease / Global Health / Health Services Needs and Demand / Humans / Intervention / Minority & ethnic groups / Neurobiology / Public health / Underserved populations