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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
by
Bok, Amanda
, Skouw-Rasmussen, Naja
, Noone, Declan
in
Best practice
/ Bleeding disorders
/ Collaboration
/ Datasets
/ Disease
/ Education
/ Gene therapy
/ Governance
/ Hemophilia
/ Hub and spoke model
/ Information sharing
/ Mapping
/ Organisational change
/ Organizational change
/ Patient agency
/ Patients
/ Quality of life
/ Registries
/ Regulatory approval
/ Think tanks
/ Workshops
2023
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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
by
Bok, Amanda
, Skouw-Rasmussen, Naja
, Noone, Declan
in
Best practice
/ Bleeding disorders
/ Collaboration
/ Datasets
/ Disease
/ Education
/ Gene therapy
/ Governance
/ Hemophilia
/ Hub and spoke model
/ Information sharing
/ Mapping
/ Organisational change
/ Organizational change
/ Patient agency
/ Patients
/ Quality of life
/ Registries
/ Regulatory approval
/ Think tanks
/ Workshops
2023
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Do you wish to request the book?
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
by
Bok, Amanda
, Skouw-Rasmussen, Naja
, Noone, Declan
in
Best practice
/ Bleeding disorders
/ Collaboration
/ Datasets
/ Disease
/ Education
/ Gene therapy
/ Governance
/ Hemophilia
/ Hub and spoke model
/ Information sharing
/ Mapping
/ Organisational change
/ Organizational change
/ Patient agency
/ Patients
/ Quality of life
/ Registries
/ Regulatory approval
/ Think tanks
/ Workshops
2023
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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
Journal Article
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
2023
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Overview
At the second series of workshops for the EHC Think Tank Workstreams on Registries, Hub and Spoke Model and Patient Agency, stakeholder participants worked towards consensus on addressing challenges to progress in areas identified in the first series of workshops. Each workshop identified a ‘guiding star’ determining the direction of ongoing focus, defined achievable ‘near star’ milestones, and explored the enablers and ‘constraints’ to achieving these.
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