Journal Article

Special Education Supports and Services for Rett Syndrome: Parent Perceptions and Satisfaction

Symons, Frank J., Merbler, Alyssa M., Byiers, Breanne J., Larriba-Quest, Kelsey, Beisang, Arthur

2020

Overview

There are no published studies describing educational experiences for girls with Rett syndrome. Given the extensive educational needs associated with Rett syndrome, it is important to understand how families perceive their daughters' educational experiences to inform education service provision. The purpose of this study was to survey parents of school-aged children with Rett syndrome to describe the educational services that they receive and understand parents' perceptions of and satisfaction with the special educational and related services. The majority of parents were satisfied with their daughters' educational services. Communication was the most frequently endorsed priority skill area, and many parents expressed frustration with limited access to augmentative and alternative communication (AAC) devices and staff training in their use. These results suggest there is a need for high-quality speech therapy and an emphasis on AAC support.

• Publisher: American Association on Intellectual and Developmental Disabilities,Taylor & Francis Ltd
• Subject: Adaptive technology / Age / Augmentative and Alternative Communication / Children & youth / Cognition & reasoning / Cognitive ability / Communication / Early intervention / Educational Experience / Educational Objectives / Educational Resources / Educational technology / Extended School Year / Families & family life / Females / Genetic Disorders / Girls / Handicapped assistance devices / Individualized Education Programs / Individualized Instruction / Mobility / Neurological Impairments / Occupational therapy / Parent Attitudes / Parents & parenting / Perceptions / Physical Education / Physical therapy / Preschool education / Satisfaction / Special Education / Special Needs Students / Students / Teaching Methods / Thinking Skills