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Controversy and Debate Series on Core Outcome Sets. Paper 5: Large-scale, mixed-methods, knowledge exchange to establish core outcomes – the SONG approach
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Controversy and Debate Series on Core Outcome Sets. Paper 5: Large-scale, mixed-methods, knowledge exchange to establish core outcomes – the SONG approach
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Controversy and Debate Series on Core Outcome Sets. Paper 5: Large-scale, mixed-methods, knowledge exchange to establish core outcomes – the SONG approach
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Journal Article
Controversy and Debate Series on Core Outcome Sets. Paper 5: Large-scale, mixed-methods, knowledge exchange to establish core outcomes – the SONG approach
2020
Overview
SONG aims to establish COS across the spectrum of chronic kidney disease and since 2014 has engaged over 9,000 participants (4,000 patients and caregivers and 5,000 health professionals) from over 100 countries to establish six COS for hemodialysis, peritoneal dialysis, transplantation, polycystic kidney disease, glomerular disease, and pediatric kidney disease [3–8]. The SONG methodological framework is based on COMET recommendations and involves the following: 1) a systematic review of outcomes reported in trials, 2) focus groups with a nominal group technique involving patients and caregivers, 3) stakeholder interviews, 4) a multiround, international online Delphi survey, and 5) consensus workshops. [...]participants individually rank outcomes and then discuss similarities and differences in priorities as a group. SONG-PKD (polycystic kidney disease), SONG-GD (glomerular disease), and SONG-PD (peritoneal dialysis) have each involved over 120 participants in at least 14 focus groups and from at least three countries in two or more languages [10,11] (Table 1).
Publisher
Elsevier Inc,Elsevier Limited
Subject
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