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Longitudinal qualitative assessment of meaningful symptoms and relevance of WATCH-PD digital measures for people with early Parkinson’s
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Longitudinal qualitative assessment of meaningful symptoms and relevance of WATCH-PD digital measures for people with early Parkinson’s
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Journal Article
Longitudinal qualitative assessment of meaningful symptoms and relevance of WATCH-PD digital measures for people with early Parkinson’s
2025
Overview
Background
Longitudinal qualitative data on what matters to people with Parkinson’s disease are lacking and needed to guide patient-centered clinical care and development of outcome measures.
Objective
To evaluate change over time in symptoms, impacts, and relevance of digital measures to monitor disease progression in early Parkinson’s.
Methods
In-depth, online symptom mapping interviews were conducted with 33 people with early Parkinson’s at baseline and 1 year later to evaluate (A) symptoms, (B) impacts, and (C) relevance of digital measures to monitor personally relevant symptoms. Maps and transcripts were coded for frequencies, Likert scale rankings (0 = not present to 4 = most bothersome), and thematic findings. Wilcoxon Signed Rank test was used to evaluate change over time.
Results
Other than walking and balance, most motor symptoms did not change significantly from baseline to 1 year later. Multiple significant changes were observed in non-motor areas (cognition, speech, sleep, mood, fatigue, pain;
p
< 0.05) and functional impacts (mobility, effort to do usual activities, personal comfort;
p
< 0.05). Thematic analysis revealed ability to cope with and compensate for
actual
or
anticipated
symptoms reduced disruptions to well-being and changed how bothersome symptoms were. All digital measures targeted symptoms that were personally important to most participants (> 80%).
Conclusion
Non-motor and walking/balance symptoms changed sooner than other motor symptoms during the course of 1 year. Evaluation of coping and compensatory mechanisms may be essential to understanding symptom bothersomeness at a given point in time. Smartphone and smartwatch digital measures were relevant to personally meaningful symptoms of early PD.
Publisher
Springer Berlin Heidelberg,Springer Nature B.V
Subject
