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Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
by
Gionet, Erin
, Grimshaw, Jeremy
, Etchegary, Holly
, Francis, Vanessa
, Pike, Andrea
, Johnston, Brian
, Goold, Susan
, Patey, Andrea M.
, Hall, Amanda
in
Back pain
/ Canada
/ Citizen participation
/ Clinical research
/ Clinical trials
/ Clinical Trials as Topic
/ Co-design
/ Collaboration
/ Communication
/ Councils
/ Decision making
/ Design improvements
/ Drafts
/ Experience
/ Health care
/ Health insurance
/ Health policy
/ Health research
/ Health services
/ Humans
/ Implementation
/ levels of engagement
/ Medical research
/ Operational definitions
/ Original
/ Patient communication
/ patient engagement
/ Patient Participation
/ Patients
/ patient‐oriented research
/ Planning
/ planning tool
/ Public health
/ Regular Issue Papers
/ Research projects
/ Researchers
/ Teams
2022
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Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
by
Gionet, Erin
, Grimshaw, Jeremy
, Etchegary, Holly
, Francis, Vanessa
, Pike, Andrea
, Johnston, Brian
, Goold, Susan
, Patey, Andrea M.
, Hall, Amanda
in
Back pain
/ Canada
/ Citizen participation
/ Clinical research
/ Clinical trials
/ Clinical Trials as Topic
/ Co-design
/ Collaboration
/ Communication
/ Councils
/ Decision making
/ Design improvements
/ Drafts
/ Experience
/ Health care
/ Health insurance
/ Health policy
/ Health research
/ Health services
/ Humans
/ Implementation
/ levels of engagement
/ Medical research
/ Operational definitions
/ Original
/ Patient communication
/ patient engagement
/ Patient Participation
/ Patients
/ patient‐oriented research
/ Planning
/ planning tool
/ Public health
/ Regular Issue Papers
/ Research projects
/ Researchers
/ Teams
2022
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Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
by
Gionet, Erin
, Grimshaw, Jeremy
, Etchegary, Holly
, Francis, Vanessa
, Pike, Andrea
, Johnston, Brian
, Goold, Susan
, Patey, Andrea M.
, Hall, Amanda
in
Back pain
/ Canada
/ Citizen participation
/ Clinical research
/ Clinical trials
/ Clinical Trials as Topic
/ Co-design
/ Collaboration
/ Communication
/ Councils
/ Decision making
/ Design improvements
/ Drafts
/ Experience
/ Health care
/ Health insurance
/ Health policy
/ Health research
/ Health services
/ Humans
/ Implementation
/ levels of engagement
/ Medical research
/ Operational definitions
/ Original
/ Patient communication
/ patient engagement
/ Patient Participation
/ Patients
/ patient‐oriented research
/ Planning
/ planning tool
/ Public health
/ Regular Issue Papers
/ Research projects
/ Researchers
/ Teams
2022
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Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
Journal Article
Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
2022
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Overview
Introduction Engaging with patients about their lived experience of health and illness and their experience within the healthcare system can help inform the provision of care, health policies and health research. In the context of health research, however, operationalizing the levels of patient engagement is not straightforward. We suggest that a key challenge to the routine inclusion of patients as partners in health research is a lack of tangible guidance regarding how this can be accomplished. Methods In this article, we provide guidance on how to codesign and operationalize a concrete patient engagement plan for any health research project. Results We illustrate a seven‐step approach using the example of a national clinical trial in Canada and provide a patient engagement planning template for use in any health research project. Conclusion Such concrete guidance should improve the design and reporting of patient engagement in health research. Patient or Public Contribution The De‐Implementing Wisely Research group is informed by a national 9‐member patient partner council (PPC). The research team includes three lead patient partners who are coinvestigators on the grant that funds the program of research. Members of the council advise on all aspects of the study design and implementation. The ideas presented in this paper were informed by regular communication and planning with the PPC; specific contributions of lead patient partner authors are outlined as follows: Brian Johnston, Susan Goold and Vanessa Francis are patient partners with a wide breadth of experience in the healthcare system and health research projects. The guidance in this article draws on their lived and professional expertise. All patient partner authors contributed to the planning of the manuscript, participated in meetings to develop content and provided critical manuscript edits and comments on drafts.
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