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\We need time, a great know-how and security for patients to always be there in time”: a qualitative study on factors distinguishing General from Specialized Palliative Home Care
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\We need time, a great know-how and security for patients to always be there in time”: a qualitative study on factors distinguishing General from Specialized Palliative Home Care
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\We need time, a great know-how and security for patients to always be there in time”: a qualitative study on factors distinguishing General from Specialized Palliative Home Care
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Journal Article
\We need time, a great know-how and security for patients to always be there in time”: a qualitative study on factors distinguishing General from Specialized Palliative Home Care
2025
Overview
Background
An increasing number of patients in the palliative phase of their disease are cared for at home by palliative home care services. A sense of security, normality of everyday life and symptom control are found to be active factors of quality of care in Specialized Palliative Home Care. Whether this also applies to General Palliative Home Care has not yet been systematically investigated. The aim of this study was to identify distinctions between General and Specialized Palliative Home Care from a healthcare professional’s perspective concerning those factors.
Methods
With a qualitative approach, we conducted 11 semi-structured interviews with healthcare professionals from different professional backgrounds in General and/or Specialized Palliative Home Care.
Results
In both General and Specialized Palliative Home Care, healthcare-professionals (HCP) found a
sense of security
(through
availability
) to be most relevant for the patients. The majority saw aspects of
normality of everyday life
as a key component for high-quality palliative home care, especially
having time
for the patient and the family caregiver(s). However, statements about
symptom control
are mainly related to Specialized Palliative Home Care. The subcodes
availability
,
having time
and
competence, symptom burden
and
financial resources
were the main distinguishing factors between General and Specialized Palliative Home Care in
sense of security
,
normality of everyday life
and
symptom control,
respectively.
Conclusions
Our results provide the basis for a clearer definition of GPHC and SPHC and contribute to identifying factors for a transferal between the two services to provide best care for the patient. Distinguishing (sub)factors revealed challenges and short-term solutions. Providing (financial) incentives to guarantee time and availability in General Palliative Home Care would lead to more effective care.
Publisher
BioMed Central,BioMed Central Ltd,Springer Nature B.V,BMC
