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Who cares for the schizophrenia individuals in rural China — A profile of primary family caregivers
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Who cares for the schizophrenia individuals in rural China — A profile of primary family caregivers
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Journal Article
Who cares for the schizophrenia individuals in rural China — A profile of primary family caregivers
2018
Overview
The present study aims to provide a comprehensive profile of the primary family caregivers of schizophrenia individuals in rural China.
A cross-sectional study was conducted with a sample of 327 primary family caregivers of schizophrenia individuals recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. The social demographic and psychological profiles of primary caregivers were measured using standard scales and self–designed scales.
The typical caregiver profile consists of a 58-year old married first degree relative (mostly parents or spouses) with a low socio-economic position. Most of them have been caregiving for over 10 years (74.3%) and have some physical illness (67.0%). The major caregiving activities were medicine management (71.6%) and hospital visit (69.4%), yet there is still 17.1% primary caregivers involved with neither of the care. Most (84%) of caregivers reported some kind of burden, with anxiety in 45.9% of caregivers and depression in 45.4%. Family caregivers also reported positive aspects of caregiving including a well-functional family (51.0%) and rewarding feelings (58.3%).
The findings of the present study have brought attention to a special group of family caregivers for schizophrenia, with implications for intervention on them in the future.
•This study was the first to draw a full-picture profile of primary family caregivers of schizophrenia in rural China.•The primary caregivers were mainly old-aged first degree relatives with low socioeconomic position.•Their main caregiving activities involved hospital visit and medicine management.•Both positive and negative mental health states were reported common among the caregivers.
