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Physician requests by patients with malignant pleural mesothelioma in Japan
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Physician requests by patients with malignant pleural mesothelioma in Japan
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Journal Article
Physician requests by patients with malignant pleural mesothelioma in Japan
2019
Overview
Background
Malignant pleural mesothelioma (MPM) is a fatal and rare disease that is caused by the inhalation of asbestos. Treatment and care requests made by MPM patients to their physicians were collected and analyzed.
Methods
This cross-sectional survey was part of a larger study (
N
= 133) regarding the quality of life of MPM patients. Specific responses to two open-ended questions related to patients’ requests regarding treatment and care were quantified, analyzed and divided into categories based on content.
Results
Responses (
N
= 217) from MPM patients (
N
= 73) were categorized into 24 subcategories and then abstracted into 6 categories. The majority of requests were related to patient-physician communication. Patients wanted clear and understandable explanations about MPM and wanted their physician to deliver treatment based on the patient’s perspective by accepting and empathizing with their anxiety and pain. Patients expected physicians to be dedicated to their care and establish an improved medical support system for MPM patients.
Conclusion
Patients with MPM had a variety of unmet needs from their physicians. Physicians who provide care to MPM patients should receive training in both communication skills and stress management. A multidisciplinary care system that includes respiratory and palliative care for MPM patients should be established.
Publisher
BioMed Central,Springer Nature B.V,BMC
Subject
/ Aged
/ Anxiety
/ Asbestos
/ Biomedical and Life Sciences
/ Cancer
/ cancer burden and supportive therapy
/ Female
/ Health Promotion and Disease Prevention
/ Humans
/ Lung Neoplasms - chemically induced
/ Lung Neoplasms - epidemiology
/ Male
/ Mesothelioma - chemically induced
/ Oncology
/ Pain
/ Patients
/ Pleural Neoplasms - chemically induced
/ Pleural Neoplasms - epidemiology
/ Pleural Neoplasms - pathology
/ Studies
/ Support
