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Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

by Daniels, Amy M. , Como, Ariel , Kostadinova, Krasimira , Shih, Andy , Hergüner, Sabri , Stosic, Jasmina

in Academic Accommodations (Disabilities) / Access to Education / Access to Health Care / Adolescent / Adult / Age / Age Differences / Analysis / Attitude Measures / Autism / Autism Spectrum Disorder - epidemiology / Autism Spectrum Disorder - psychology / Autism Spectrum Disorders / Autistic children / Barriers / Behavioral Science and Psychology / Caregiver Attitudes / Caregivers / Caregivers - psychology / Child / Child and School Psychology / Child, Preschool / Children / Clinical Diagnosis / College Faculty / College Science / Cross Cultural Studies / Disorders / Educational Technology / Europe, Eastern / Family Characteristics / Female / Foreign Countries / Health aspects / Health care access / Health Needs / Humans / Individual Characteristics / Intervention / Language therapy / Male / Medical diagnosis / Medical treatment / National Surveys / Networks / Neurosciences / Original Paper / Parent Caregiver Relationship / Parent Surveys / Pediatrics / Pervasive Developmental Disorders / Polls & surveys / Psychiatrists / Psychiatry / Psychology / Public Health / Risk factors / Social Bias / Social Services / Social Stigma / Speech / Speech Language Pathology / Speech therapy / State Surveys / Stigma / Surveys / Surveys and Questionnaires / Therapy / Verbal Ability

2017

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Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

by Daniels, Amy M. , Como, Ariel , Kostadinova, Krasimira , Shih, Andy , Hergüner, Sabri , Stosic, Jasmina

2017

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Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

by Daniels, Amy M. , Como, Ariel , Kostadinova, Krasimira , Shih, Andy , Hergüner, Sabri , Stosic, Jasmina

2017

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Journal Article

Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

Daniels, Amy M.,

Como, Ariel,

Kostadinova, Krasimira,

Shih, Andy,

Hergüner, Sabri,

Stosic, Jasmina

2017

Overview

The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.

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Publisher

Springer US,Springer,Springer Nature B.V

Subject

Academic Accommodations (Disabilities)

/ Access to Education

/ Access to Health Care

/ Adolescent

/ Adult

/ Age

/ Age Differences