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Identifying metrics of success for transitional care practices in childhood cancer survivorship: a qualitative interview study of survivors
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Identifying metrics of success for transitional care practices in childhood cancer survivorship: a qualitative interview study of survivors
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Journal Article
Identifying metrics of success for transitional care practices in childhood cancer survivorship: a qualitative interview study of survivors
2020
Overview
Background
Adolescent and young adult (AYA) childhood cancer survivors (CCS) should be empowered to continue their survivor-focused care as they transition into adult medicine. However, the majority of AYA-aged survivors become lost to follow up around the age of typical transition to adulthood. The purpose of this study was to identify, from the patient’s perspective, key factors that facilitate successful transitions to adult-centered survivorship care.
Methods
A qualitative study was conducted with AYA CCS (
n
= 29) from the survivorship clinic of a single institution as key informants. Data were collected through a series of structured phone interviews and subjected to thematic content analysis.
Results
Four major themes with multiple subthemes were identified: (1) transition practices need to be flexible and individually tailored; (2) effective communication is critical to a successful transition; (3) continuity in providers is needed during the transition; and (4) comprehensive care means care that also addresses psycho-social well-being.
Conclusions
From the perspective of AYA CCS, the ideal model of transitional survivorship care could include a patient navigator who promotes provider flexibility, consistent communication, and pro-active comprehensive care that encompasses both medical and psycho-social well-being. Models of care for CCS should be built to provide, or seamlessly facilitate, continuous survivor-focused care across the age continuum. A longitudinal relationship with a survivor-focused provider can help promote the values that CCS’ report as important in transitioning care from pediatric- to adult-centered care.
Publisher
BioMed Central,BioMed Central Ltd,Springer Nature B.V,BMC
Subject
/ Adults
/ Age
/ Analysis
/ Bias
/ Biomedical and Life Sciences
/ Cancer
/ cancer burden and supportive therapy
/ Cancer Survivors - statistics & numerical data
/ Childhood cancer survivor transition qualitative
/ Children
/ Female
/ Health Promotion and Disease Prevention
/ Humans
/ Male
/ Medicine
/ Oncology
/ Patients
/ Success
/ Survival
